top of page
Reaching Out

Case Study

Over the past three years I have formally conducted 6 in depth interviews with rare disease patients and caretakers.

​Case 1

Chan Tze Kin - 15 years old

Duchenne’s Muscular Dystrophy

PHOTO-2024-07-15-00-24-04.jpg

Case 3

Ka Yan - 30 years old
Rett Syndrome

Case 2

KiKi 16 years old

Neuromuscular Diseases

Screenshot 2024-07-15 at 12.56.17 AM.png
Case 4
YY - 15 Years old
Spinal Muscular Atrophy 
8faab998-e6b6-40ce-9da1-c43c81f80be8.jpg
Open DJI_20240722131409_0257_D.jpeg

Case 5

Case 6

Caretaker Mr Z

​Huntington's Disease

Long Hei - 26 Years old

​Huntington's Disease

R.52f4d7f4ff2aff50e6ff6fc4fd6b0e4b.png
PHOTO-2024-08-29-23-12-10_edited.jpg

The information provided on this website is intended for general informational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Always seek advice from a physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

​

​All patient information, including stories, photographs, and other personal data, presented on this website has been shared with the explicit consent of the individuals involved or their legal guardians. We respect and prioritize the privacy and confidentiality of patients and their families.

bottom of page