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Rare Disease Patient List

Patient registries that have been created with experts’ participation and support include:

Hong Kong Spinocerebellar Ataxia Patient Registry

Enquiries Hotline：2336 5639

(Hong Kong Spinocerebellar Ataxia Association)

Hong Kong Neuromuscular Disorders Patient Registry
HKNMDPR_Logo_Chi.png

Enquiries Email：michaelykl@connect.hku.hk (Mr. Michael Yu)

Hong Kong Neuromuscular Disorders Patient Registry

Enquires：2708 9363 (Retina Hong Kong)

Amyotrophic lateral sclerosis (ALS) Patient Registry

Enquiries hotline: 2338 4123 (Hong Kong Neuro-Muscular Disease )

The information provided on this website is intended for general informational purposes only and is not a substitute for professional medical advice, diagnosis, or treatment. Always seek advice from a physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.

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​All patient information, including stories, photographs, and other personal data, presented on this website has been shared with the explicit consent of the individuals involved or their legal guardians. We respect and prioritize the privacy and confidentiality of patients and their families.

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